Freedom of information response

Prader-Willi Syndrome

Publication date: 
Thursday 16 January 2020
Request: 

Please supply this information as the most up to date snapshot available. Please include data for all people aged 18+.

1. Please provide the total number of adults known to local authority social services who have a diagnosis of Prader-Willi Syndrome.

2. Please provide the total number of adults known to social services who have a diagnosis of Prader-Willi Syndrome living in a care home (including both residential and nursing care homes).

3. Please provide the average weekly fee (average weekly support cost) for adults with a diagnosis of Prader-Willi Syndrome living in a care home.

4. Please provide the total number of adults known to social services who have a diagnosis of Prader-Willi Syndrome living in supported living.

5. Please provide the average weekly fee (average weekly support cost) for adults with a diagnosis of Prader-Willi Syndrome living in supported living.

6. Please provide a list of the providers with which adults with a diagnosis of Prader-Willi Syndrome are living (please include both supported living and care home providers).

Response: 

1. Fewer than 5

2. Fewer than 5

3. £2,383.24

4. None

5. Not Applicable

6. Craegmoor Divisional

We are unable to provide an exact number for questions 1 and 2 above as:

  • there is a low number involved.
  • the release of this information could identify individuals which would constitute their personal data under the Data Protection Act
  • there is no prior expectation on the part of these individuals that their personal information would be published in the wider public domain under the FOI Act
  • personal data of any other person is exempt under section 40 (2) of the Data Protection Act.

In the interests of transparency we provide this information to you categorised as fewer than 5 to give you an indication of the figures.

You are free to use any information supplied to you for your own use, including non-commercial research purposes. However, any other type of re-use, for example, by publishing the information or issuing copies to the public will require the permission of the copyright owner.

Where the copyright is owned by Thurrock Council, you must apply to the Council to re-use the information. Please email information.matters@thurrock.gov.uk if you wish to re-use the information you have been supplied. For information where the copyright is owned by another person or organisation, you must apply to the copyright owner to obtain their permission.

Request reference:
FOI 9661